This is my story – I am ordinarily a very private person. But I think that it is important to share with you my journey – take you through the darkest days to where I am now.
Here we go:
Somewhere around 2003, I developed fevers, severe sore throats and episodes of extreme fatigue. I was on multiple courses of antibiotics. I would sleep for several days in a row. I developed joint pain and severe back pain. On one occasion while on a long drive I was in such pain that I had to be carried from the car. I suffered from depression that came and went. Simple noises annoyed me. II felt like ants were crawling on my skin.
In 2005, I was at a health conference and an exhibitor at the conference did live blood microscopy on me. After interviewing me and checking my blood, he told me that I had Chronic Lyme Disease. What a surprise! While I had been bitten by a tick some years before I never had a bulls eye rash.
When I returned home and asked my different medical doctors if my symptoms were Lyme related, I was told that there was no Lyme in California. So, I researched Chronic Lyme Disease myself. I learned that the prominent bacteria in Lyme, Borrelia Burdorfei had mechanisms to hide during antibiotic use and that if antibiotics were to work, they would take years. I did not feel that my gastro-intestinal tract could tolerate any more prolonged antibiotics and I was concerned about them affecting my immunity. (Later I learned that there are usually multiple organ-isms that are associated with what I call the Chronic Lyme Disease Syndrome and that many of them have the ability to change shape and change characteristics eluding antibiotic treatment).
During this time, I was doing relatively well. I researched natural treatments and treated my-self with herbs. At this time, there were few lyme literate doctors. Maintaining a relatively sense of well being, I exercised, improved my diet, eliminated sugar from my diet, went gluten free, and had my mercury fillings replaced.
In 2007, I met Bayne Boyes. He has been with me through this journey. We went hiking in the hills on a slippery slope. I fell and broke my right wrist. I went and had it cast and a day later I flew off to Las Vegas to attend a conference. While there my hand swelled below the cast and got super hot. The pain was excruciating. I submerged my hand in ice water to achieve any degree of comfort. I took some strong pain pills – nothing really worked.
I called my orthopedist and he said – oh you probably need a water pill for the swelling. I said no this is not just fluid – there’s something seriously wrong. He prescribed a water pill – you know the kind you take for hypertension. I returned to L.A. immediately and went to see another orthopedist. He had nothing to offer.
I began intensive acupuncture. I saw yet another orthopedist and a neurologist without relief. Shortly thereafter, I flew up to Vancouver to be with Bayne, now my fiancé. He took me to his chiropractor who recommended a physical therapist who told me I had RSD, Reflex Sympathetic Dystrophy, now known as Complex Regional Pain Syndrome. I began physical therapy 5 times a week and continued intensive acupuncture. I used an arm compression machine to push the fluid out of my right hand and arm. I recovered over the better part of 15 months. Only years later did an acquaintance from the East coast tell me that Chronic Reflex Pain Syndrome is a very common part of the Chronic Lyme Disease. Wow! That was that an eye opener.
Fast forward to the summer of 2010. I fell into a dark, deep hole. I developed severe depression, severe anxiety, panic attacks, compulsive obsessive syndrome, and social withdrawal. I developed severe insomnia. I would check the clock every half hour. In the morning, I would leave bed only to return to it within an hour. I had to lie down. I just didn’t feel I could sit up. I was tormented by my thoughts. I PRAYED for help.
I had developed severe brain fog. I couldn’t concentrate. I couldn’t put sentences together when I read. I didn’t enjoy tv. I suffered from lethargy and malaise.
During this time, my throat became increasingly sensitive. Abrupt intense gagging and retching occurred a couple of times daily. Sometimes I would bring up a meal I’d eaten a couple of hours earlier (undigested), sometimes it was just protracted dry heaves. On many occasions my throat felt tight or like it was difficult to swallow. My throat and mouth became very sensitive, I could hardly brush my teeth, I couldn’t tolerate the toothbrush in my mouth. My tongue be-came coated. The taste of many foods altered and became unpleasant. My diet became more and more restricted. I had water intolerance. I would try to drink water only to be able to take a few sips. Sometimes the sip of water precipitated a gag. I was ruining my teeth and throat with the gagging. I had read that this was a symptom of Lyme. None of the herbs worked. Antacids didn’t work. Unsuccessfully, I tried to meditate my way through it.
On top of all of this my bladder was extremely irritable. It seemed that I had to urinate every half hour. I was afraid to leave the house. I was constantly aware of when was the next time I was going to have to find a bathroom.
Early on I had palpitations, night sweats, nerve pain, tingling, numbness of the extremities, joint pains. I developed chemical sensitivity, many odors annoyed me. I couldn’t stand for any-one to wear perfumes in my presence.
My hair thinned, my balance intermittently became unstable. Oh yes, early on, every once in a while, I would fall down – for no apparent reason. I had episodes of floaters. My hand writing became illegible, the tremor was worse in my right hand than my left. Rarely my whole body would shake. Certain muscles developed twitches.
I developed social withdrawal. I avoided my friends and my family. My personality changed. I couldn’t remember how to laugh. I would watch something that I intellectually knew was funny but it didn’t make it laugh.
I turned to Spirituality. I thought to myself – the Universe is trying to slow me down. Okay, I thought, I have really slowed down!
In the summer of 2013, I broke my left wrist in a biking accident. I was worried about a pain syndrome developing as it had on the right side but fortunately, I recovered uneventfully from the surgery to put a plate in my wrist.
In early 2014, I heard of a treatment that looked very promising. An acupuncturist in Canada had cured her own Chronic Lyme Disease. I, too, began that therapy. It was very complex and it was to take at least 12 to 18 months to notice any changes. But I was diligently following it. I
noticed nothing. Instead, I had major Herxheimer reactions, reactions related to the toxin re-leased by the bacteria.
Then one day in July, 2014, I went for a massage in Vancouver. At the end of the hour, I developed a severe sore throat. It was excruciating. I ran home with Bayne to gargle with salt water and to sip some tea. As I was sipping the tea I noticed that it was drooling out of the side of my mouth. I said “call an ambulance.” Bayne replied I can get you there faster. He drove me to the nearby emergency room. I remember signing a paper and the next thing I knew I awoke in the ICU, with a tube down my throat on a respirator. My hands tied to the bed.
I had a tube for breathing, a tube down my nose for nourishment, an intravenous line, an arterial line for measuring my blood gases, and a central line. I had no idea what day it was. I discovered later I had been in a drug induced coma for four and a half days. I had not responded to steroids so it wasn’t an allergy, and nothing had grown out on routine bacterial culture. The physicians weren’t sure what it was – I thought for sure it was an acute attack of Lyme Disease.
Fortunately 24 hours later when they pulled the breathing tube, I was able to breathe on my own. The attack had subsided. I was sent home with an additional diagnosis of Gastro Esophageal Reflux Disorder and placed on powerful antacids. I was grateful to the excellent services at St. Paul’s Hospital for pulling me through.
The summer was eventful in other ways but the details do not contribute to the story and it is already long enough. I returned to Los Angeles, to have my thyroid evaluated and gastroscopy.
The thyroid tests didn’t really reveal anything. The gastroscopy showed gastritis and Barrett’s mucosa. These are abnormal or metaplasia changes in the cells of the lower portion of the esophagus – considered to be a premalignant condition. I was advised to continue the antacids which I did although they did nothing for my gagging and retching which continued.
My family implored me to see a Psychiatrist. They wanted to see me on antidepressants. I advised them that this would do nothing for the lyme toxins wreaking havoc in my head and I was unwilling to endure the side effects of antidepressants.
So I really got serious. I was in despair. I was indeed desperate. I went down on my hands and knees and surrendered to my higher power. I prayed for a miracle.
In late October of 2014, I received an email from a physician that I had met years ago. It contained a video about a man with Chronic Obstructive Pulmonary Disease (COPD). I probably wouldn’t have opened it but my girlfriend had recently told me that her mother was suffering from COPD. When I watched the video I was in disbelief. This man who had been deteriorating from the disease, on oxygen, barely able to walk 4 feet was telling his recovery story. He was off oxygen therapy, he had good color, he was walking with vitality. He was traveling. He pro-claimed he was well. I thought to myself this is to good to be true. He was on the BX Protocol™. I went to their website and began investigating. I saw that it reversed Lyme Disease.
Bayne researched the treatment. He discovered that it worked for mitochondrial deficiencies. Lyme Disease is considered to be a Mitochondrial Deficiency. At that time, I didn’t really under-
stand the science behind it. But knowing that I was passing the days not living them, I called to sign up for the same protocol.
As I write this, it is 7 months since I began the program. I feel well!
I am happy. I smile and I laugh. I am having fun. I am relaxed. I am optimistic. My OCD has vanished. I fall asleep easily and I get at least 7 hours of sleep a night. It’s amazing! It’s a miracle. My prayers were answered.
I have reestablished my friendships. I accept invitations and I in return, extend invitations.
I love being with my family. I love being with my friends. My self esteem has returned.
My confusion and brain fog are gone. I have been taking classes on line. And finding them fun!
My color is better. I am told my aura is better. The old lethargy and inertia are gone. My balance is near perfect. My stamina is really good. I am exercising and pushing myself.
I have had no tightness in my throat and I notice that I am able to taste foods again. I am enjoying eating.
My bowel and bladder are improved. My joints are better. My vision is better.
So, I proclaim I am well!
I am grateful!
Ordinarily I am a very private person. I would never have dreamed that I would create a website to tell my story, my journey and my recovery. Today, I even did a video testimonial! I can’t believe it. But I am very grateful. And now, I must give back and inspire with hope other people who are suffering from health issues! I share my story so that you may know that there is a revolutionary modality availability to address and reverse Chronic Lyme Disease – to give you your life back.
Here’s is my updated story:
Sally S. M.D. July, 2015